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*IMPORTANT: This site will not provide medical answers. Using the resources on this website may help you learn more about your medical diagnosis, but we make no promises or guarantees that any of the information is correct, current or relevant.

This site provides only tools to help you find information which may then be discussed with medical and other professionals.

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Acknowledgements

Specific Conditions, Disorders and Diseases*

( Updated: 01/30/2010)

The following links have been provided by diagKNOWsis.org visitors. If you have information about a specific disease or condition and would like us to link to it, please send us the information by filling out the submission form, or sending us an email.

Learn how to empower yourself!


You Bet Your Life! The 10 Mistakes Every Patient Makes (How to Fix Them to Get the Health Care You Deserve) by Trisha Torrey

Master List

Conditions and Diseases

Rare Disorders

National Organization for Rare Disorders

Agoraphobia and Panic Attacks

A variety of resources and advice for those who suffer from these mental health challenges.
www.agoraphobia-panic-attacks.com

Autoimmune Diseases (general)

Support group for anyone with autoimmune diseases can be found at www.wideberthamessageboard.com and a blog-type site with more information at: www.notovertillthefatladysings.com

Brain Tumors

American Brain Tumor Association

Cancer

American Society of Clinical Oncologists

HonestMedicine (some behind the scenes information about everything from care to drugs)

Celiac Disease

For those diagnosed with Celiac disease, but want to eat a vegetarian or vegan diet: Vegiac.com

Chronic Ailments and Caregiving

These free e-books are provided by Sangeeta Bhagwat at http://www.stormpages.com/sbhagwat/

Chronic Diseases

Excellent website for researching and learning about chronic diseases ranging from Crohn's Disease to Lupus to IBD.
http://www.advocacyforpatients.org

Crohn's Disease

From Nursing Assistant Central:

100 Helpful Resources and Communities

Cutaneous Lymphomas

Cutaneous Lymphoma Foundation

Dry Eyes

Dry Eye Zone includes medical and support information

Fluoroquinolone Victims

Fluoroquinolone Advocacy
For people who have had trouble as a results of taking flouroquinolones (antibiotics)

Hemangioma / Vascular Anomolies

www.NovaNews.org
The National Association of Vascular Anomalies

Interstitial Cystitis

http://www.ichelp.com/ Information and support about this painful bladder condition.

(Kidney) Dialysis Advocates

http://www.assndialysisadvocates.org/
Helps educate those who must undergo kidney dialysis.

LGD Alliance

Lymphangiomatosis and Gorhams's Disease Alliance

Lyme Disease

LymePA contains an excellent list of links to additional Lyme Disease resources.

MRSA (hospital acquired infections)

MRSA Survivor's Network
(Methicillin-resistant Staphylococcus aureus)

Neuropathy and Peripheral Neuropathy

Neuropathy Action Foundation

Neurological Disorders and Stroke

National Institute of Neurological Disorders and Stroke

Sleep Disorders / Sleep Apnea

Link here for a comprehensive list of resources.

SMA: spinal muscular atrophy

http://www.fightsma.org Learn more about the leading genetic killer of children under age 2.

X-Linked Hypophosphatemia
(XLH)

X-Linked Hypophosphatemia (XLH) was also formerly referred to as VDRR or Vitamin D Resistant Rickets
www.xlhnetwork.org

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Page Updated: 01/30/2010